During my visit to Sophia Health Institute last week I booked two appointments with Dr. K. The first one was intended for physical stuff while the second one was intended for emotional stuff. Dr. K uses muscle testing, or rather ART (autonomic response testing), to look for emotional blocks, just like he uses ART to figure out medical issues.
The appointment started with us talking about the pain I experienced while getting an ozone injection to my bottom right wisdom tooth extraction site. We did some muscle testing around that and other stuff and he then asked me if he could do some emotional testing.
Here is my limited understanding of how this works. He checks the patient’s body to see which organ needs to be addressed. Each organ is associated with certain emotions, and he tests for each emotion. After finding which emotion needs to be addressed, he then tries to figure out details around it with muscle testing. Like I said, it’s a “limited” understanding of how it works.
When Dr. K checked my body with muscle testing the organ that came up was my lungs. The emotions associated with the lung are grief, sadness, and detached. He said “grief” out loud while muscle testing and I was sure that was it as Mojo came to mind when he said it, but that wasn’t it. He then said “sadness” and I was sure that wasn’t it, but it sure was. I was trying to figure out what I could possibly be sad about other than being sick obviously, but I really did not feel sad.
Next Dr. K muscle tested different times in my life and narrowed it down to when I was still in the womb. I had no idea where this was going. With more muscle testing he then determined that the sadness was caused in the 9th week of pregnancy. He then asked me if I had heard of the vanishing twin syndrome and I sort of nodded although I wasn’t really sure what he meant except that it was pretty self explanatory. As he started talking about the fact that there was a twin when my mother was pregnant with me I realized where this was going and I felt this profound sadness and I just started to cry. He explained more about the vanishing twin syndrome, mentioned percentages of pregnancies that start as twins but don’t result in twins, and gave me some guidance about how to deal with this. Next he determined that it was an identical twin – so another girl.
I just kept crying for a while but eventually calmed down and we finished the appointment. I walked into the IV room to lie on the BEMER mat while Dr. Alena, who was in with us to do ART, wrote up my treatment plan. While I was lying there I just kept crying and I couldn’t stop. I felt completely overwhelmed and sad.
After discussing my treatment plan with Dr. Alena I went back to the hotel to have lunch. I wasn’t really sure what to do with this new information so I called my friend S. and we talked for a bit. Then I had to run back to the clinic and the day got really busy so I sort of stopped thinking about it. That was Thursday. Friday morning, every time I did think about it, I just couldn’t go there and pushed it aside I supposed.
Since coming home I have read a little bit more about it. This site has some interesting information and of all the typical personality characteristics listed for the surviving twin, the following apply to me:
- Control Issues
- Survivor’s Guilt
- Sabotaging Relationships (in the past)
- Not Deserving
- Fascination With or Friends With Twins (for me it’s a fascination with twins – always have been)
- Low Self-Esteem, Lack of Self-Love
And of the clues listed on that page, the following could apply to me/my mother:
- Trauma to the Mother (not 100% sure but possible)
- Mother Smoked (at 9 weeks she may not have known yet that she was pregnant)
- History of Twins in Bloodlines – yup
- No Ultrasound Background – not sure she would have had one that early
- Imperfections or Improper Nutrients Reaching Both Fetuses
When I talked to Dr. Dahlgren about it Friday and told her that I couldn’t “go there” she suggested I just write about it for 10 minutes ever day. I guess this blog post counts as writing about it.
I did read on some sites that it’s a good idea to name your twin. I tried to think of a name I would give a twin and the first one that came to mind was Katrina. I don’t particularly like Katrina, but incidentally a lot of people, when they first meet me, end up calling me Katrina. But then trying to name a vanished twin just felt really bizarre. This also brings up a lot of questions. As a Christian, I believe that my twin, if there really was one, would have gone to heaven. So what does that twin look like now? Does this twin look exactly like me, all grown up, or is that twin still a 9 week old fetus? So this is where it gets really weird for me and I just stop thinking about it, which is exactly what I am going to do now.
I got back from a week in Woodinville, WA last night. Ordinarily I try to blog every day after my appointments, but this trip was so busy and stressful, I just didn’t get around to it. So here’s a summary of what happened to the best of my recollection. I will work on combining my new and current treatment plan later and will post it on my treatment page when I am done.
First appointment with Dr. Dahlgren. We went through some questions after which she did the usual muscle testing to see what is going on with my body. There weren’t many changes or new things and she said viruses and parasites were still testing pretty high. She put me on Biotech Sage Memories for circulation and brain health, Quicksilver Scientific Clear Way Cofactors for detox support, and Beehealthy Farms Propolis Extract for an anti-viral.
Right after my appointment with Dr. D I got a UVBI with Dr. Greg, followed by a steam sauna with ozone and a colonic with Desiree. The saunas cause some heart racing for me and the colonics cause a lot of cramping, but after I am done I always feel so much better. The best part though is getting to chat with Desiree while I am there. Everybody at Sophia is amazing and kind and in addition I have made a special connection with Desiree and it’s like seeing a long time friend every time I go, although I have only known her for about a year now.
I started all my supplements right away and with the full dose. That may have been a mistake because by 6 PM that night I was ravenously hungry and craving nuts for some reason. I couldn’t figure out why, but no matter how much I tried to distract myself I kept thinking about and craving nuts. Finally, around 7 PM, I drove to the store, bought peanut butter, almond butter, and some macadamia nuts and started tearing into them in the car on the way back to the hotel. I probably ate half a jar of each of the nut butters and a handful of macadamia nuts. It then occurred to me that it could be die off from the propolis extract. Dr. D prescribed it as an anti-viral, viruses love and thrive on arginine, and amino acid, and nuts are high in arginine.
I did not sleep well at all. Woke up several times throughout the night and I believe I only slept until 4 AM or something, so I was pretty tired. Dr. D had recommended that I get a thermogram with Dr. Alena which is the first thing I had that morning. That’s a ton of fun….no caffeine, no shower, no cosmetics/lotions/etc., before you go in. Then, they take your temperature on various spots on your body, next you get to stand naked in a room temperature room for 10 minutes, then they take all those readings again. As soon as that was over with I drank the coffee I had brought with me in my backpack.
From there I went straight to my appointment with Dr. Klinghardt. There is always another ND in the appointments with Dr. K and that day Dr. Schaffner was in with us. He asked me a few questions and then looked at my latest panoramic x-ray. He commented on all the metal in my upper jaw from my jaw surgery in 1993 and also said that my cavitations don’t look like they have healed properly. I got on the table for muscle testing and those did test as blocking. He ordered a MELISA metals test kit for me to see if I have become allergic to the metals they used and also did a DMPS sinus lavage, which he wants me to continue doing daily at home.
He said MSM would really be helpful for me and ordered an IV push for after our appointment since I don’t seem to be absorbing much of what I take internally. He also ordered injections in the sinus pattern with DMPS and he asked if I have a place in Nashville where I can get MSM IVs. I suggested my husband and he thought that was a great idea. I found out later that apparently many patients do their own IV pushes since, much like me, they can’t find a doctor at home to do it for them. In addition to the MSM push, he said to switch from oral to injectable B12 and MTHF due to my malabsorption issues.
After the appointment Dr. Schaffner wrote up my new treatment plan and discussed it with me. One thing they recommended is that I see Dr. Mashoof for ozone injections into my bottom right extractions – the wisdom tooth and 3rd tooth from the back. There were recommendations for new supplements and some prescriptions which I will all list when I update my treatment plan page.
I was very emotional that day from stress, finding out I still have a parasite issue after all the anti-parasitics I have taken, and not sleeping well. So when Dr. Schaffner did the DMPS injections in the sinus pattern, meaning in various spots in my face, I just started to cry. Not only did they hurt a lot, but it was just overwhelming to get roughly 20 injections into your face, plus some in the front of my neck, the back of my head, and the back of my head. After that I was worn out.
That afternoon I had an appointment with a dentist in Seattle to see if I need any work done. The only thing he really commented on was the metal in my upper jaw, which I already knew was a problem, and that my bite could be adjusted. He had a lot of information, we talked for about an hour, and after that I had to rush back (in Seattle traffic) for my appointment with Dr. Aleks for an ostheopathic/massage appointment.
Dr. Mashoof was kind enough to see me that morning on short notice. He numbed both extraction sites first, then did the ozone injection into the first extraction site which was the 3rd tooth from the back. I didn’t feel a thing. When he did the ozone injection into the wisdom tooth extraction site I wanted to jump off the chair it hurt so bad. Once again, I started to cry like a baby. He apologized repeatedly for hurting me, I apologized repeatedly for crying, and he then explained that my bone back there is very soft. Before I left he said to make sure I tell Dr. K that the bone back there is soft.
Next I went back to Sophia for my long appointment with Dr. Dahlgren where she does and overall check, answers questions, and muscle tests all the current supplements you are on. I normally bring food for muscle testing as well, but this time I made another half hour appointment with her on Friday mostly for muscle testing.
At this appointment Dr. Dahlgren mentioned that my stress level is too high and that she is concerned for me and my health. I agreed with her because I was definitely feeling the stress and how it was affecting me negatively.
Prior to my trip here I had been reading more about autohemotherapy. I had asked DH if he would be willing to do them for me provided Dr. Dahlgren agreed they could be beneficial and he said he would. She did think they could help me and showed me how to do it at the end of our appointment.
One thing that had been on my mind was something Dr. Dahlgren had told me during a phone appointment last year. She had mentioned that the first 6 to 12 months with someone who has KPU are rough with lots of ups and downs but that after that time period, it will be like a big cloud has lifted. I am at 16 months of treatment now and while I have seen improvements, I certainly don’t feel like a big cloud has lifted. At first I was hesitant about bringing it up because I did not want her to think I don’t trust her or the other doctors or that I am blaming them (one of my issues) but I am glad I did. She said when someone doesn’t heal in the “normal” time frame there is usually some other block. It’s not necessarily an infection but could be something environmental, like mold for example. She said one of her patients literally had a radon leak in her house and once they found the leak and took care of it she progressed much faster. It could also be emotional, spiritual, a relationship, or something like all the metal I have in my mouth. So she said we just need to keep looking and digging and we are just looking for that one thing that will tip me over the edge and just make me feel a lot better. She did say that all my organs are testing better and that I have made progress.
She then muscle tested all my current supplements and wrote up everything that was blocking and still testing well, which I will list later. After we were done I got another UVBI, steam sauna, and a colonic. Fun times!
I had another appointment schedule with Dr. K this morning. I was waiting in his office when Tiffany, one of the receptionists, brought in a dentist from Santa Barbara. She was there with one of her patients and they asked if she could stay in the room during my appointment. I told them that was fine.
Dr. Alena came in first and asked a few questions. I told her that today’s appointment was supposed to be a PK (psycho kinesiology) appointment. Next Dr. K walked in and we all started talking. I mentioned to him what Dr. Mashoof had said, that the bone in the wisdom tooth extraction site is really soft, and he said that means I need surgery. He said the fact that I had pain during the ozone injection despite being numbed and that the bone is soft, means there is an infection and necrotic tissue which needs to be removed.
I got on the table and we started muscle testing rather than going straight to PK. He did confirm that that cavitation needs to be addressed (incidentally the thermogram also flagged that “tooth” as a problem) and asked Destiny to see if she could get me in with Dr. Panna that afternoon. Unfortunately he was flying out that day and wasn’t going to be back until today. So they said I should contact Bob Harris in Louisville, KY to see if he has any referrals in my area. The dentist who was with us, Cynthia, said she knows Bob Harris and would send him an email and provide him with my email address. I guess it wasn’t a coincidence that she was there that day!
We continued with our appointment, he talked about the MSM IV pushes again, and indicated that my thyroid is off. I already knew this as I have periods when I feel hypothyroid and periods when I feel hyperthyroid, on the same dose of thyroid medication. He then asked if I have anybody that could do procaine injections into my thyroid. I mentioned my husband and he thought that was great. Incidentally, the week before I came here, I had been wishing I could do my own procaine injections into my thyroid.
So now I am looking at the following per week:
- 1 to 2 procaine injections into my thyroid
- 1 procaine injection into my scars from previous surgeries
- 1 to 2 IM magnesium sulfate/procaine injections
- 2 B12 IM injections
- 2 MTHF IM injections
- 1 MSM push
- 1 to 2 autohemotherapy injections
He then did some PK work which I will talk more about later, but it was pretty intense. After the appointment, while Dr. Alena wrote up the treatment plan, I got on the BEMER mat and just cried. It felt good to get it out. Next Dr. Alena and I talked about the treatment plan, which also includes a daily MISO soup (hot water, fresh cilantro, MISO) to help detox aluminum. Then she injected my thyroid and surgery scars with procaine and I was done.
Dr. Alena and I discussed when and where to get the cavitation surgery done. I had the idea of staying over the weekend, getting it done Monday morning, and then flying home Tuesday or Wednesday. It all seemed a bit rushed but I really want this infection out of my jaw.
When we were done Destiny confirmed with Dr. Panna that he could take me Monday at 7:45 AM. I talked to Bob about it later and he agreed it might be best to just get it done since I was already here. However, I was concerned about flying a day or two after having my jaw cut into so I told him I would get some more information the next day.
Later that day I had another appointment with Dr. Aleks for an ostheopathic treatment and massage.
I was feeling really stressed that morning, trying to decide whether to stay for the surgery or do it at a later time. After dropping my friend L. off at the Sophia spa for a treatment I went to the clinic to talk to Destiny. She contacted Dr. Panna about cost and healing time. Dr. Panna responded that it would cost around $2,500 for the cavitation surgery (or more) and that I would need to wait 6 days before flying home. That made the decision to stay until the following week less appealing. I do want this infection removed, and it would have been cheaper to just stay versus paying for another full round trip, but then I would have sat at the hotel all week with no other appointments except a daily IV to help me heal. I found out that Dr. K was going to be in the clinic the last week of June so my thought was to come back at that time and maybe get in to see him as well, but of course he is already booked.
At 11:30 I had an appointment with Dr. Dahlgren and ran it all past her. I mentioned my thoughts about coming back the last week of June, rather than staying and getting it done right away. My thought with that was that by then, it would be worth it to make another round of appointments with her, get muscle tested on my current supps, get other treatments, etc. opposed to just getting IVs for the cavitation surgery. She said waiting until then was totally fine, just not to wait too long. Dr. D said sometimes they tell people it needs to get done soon and they come back 6 to 8 months later and it still hasn’t been taken care of. That won’t be me. Now that I know there is an infection I want it GONE!
I had made this appointment mostly for muscle testing some foods, since there never seems to be enough time to do it during the normal “last” appointment with Dr. D. I figured this way I can bring more foods to be muscle tested. I got on the table and Dr. D said that I was actually testing much better overall then I did a few days ago, and I felt better that day. I had a lot more energy and was much more positive than I was on Wednesday. She tested all the foods I brought and I also had some skin care products in there and I was surprised that only a few were blocking.
Dr. D recommended that I try to get in with Alexis so she can run a food de-sensitization program on me with the Zyto. I was able to get in at 1:30 PM and I am honestly not sure what to make of that appointment or rather of the Zyto. I am a little skeptical about it but have heard people say it has really helped them.
I always have such good intentions of keeping my blog updated, but there are still too many times when my brain is just not functioning properly. I start writing a post in my head, but then can’t seem to actually do it. The ability to concentrate, wrap my mind around things, focus, and think clearly, are actually still among some of my bigger problems. So here are some bullet points of what’s been going on since I last talked to Dr. D in February.
- Pain in my teeth, which Dr. D felt was due to a sinus infection, kept getting worse despite all the natural stuff I tried.
- Was afraid to take Levaquin, which Dr. D prescribed, due to side effects.
- Local doc put me on 10 days of augmentin.
- Pain in my teeth improved slightly but did not go away.
- Ended up taking Levaquin for 10 days after augmentin.
- Pain in my teeth was still not gone.
- Used amphotericin nasal spray daily for two weeks. The pain in my teeth is now mostly gone, but still flares up occasionally in various teeth.
- I believe the infection, pain in my teeth for 5 weeks, and then another cold, hit my adrenals pretty hard. I am now back to waking once or twice at night and can’t seem to sleep past 5:30 AM, even if I go to bed late. My FT3 was 3.8 on my last blood test, which is lower than before despite taking slightly more Cytomel. My first morning heart rate is back to the 120s to 130s. It had dropped to the 80s to 100s, so that’s all a bit disappointing. I had weaned from 35 mg of HC to 30 mg and am now back up to 35 mg.
- My digestion seems worse than ever and I am hungry all the time.
- In some ways I feel better though. For example, I have been able to do a few HIIT and weight work outs.
- I feel more like the old me again – positive, adventurous, a desire to go out and do stuff, etc.
That’s about it. Sunday I am heading back to Seattle for appointments with Dr. D and Dr. K at Sophia Health Institute. I also already have appointments set up for UVBIs, saunas, colonics, BEMER mat, and adjustments with Dr. Aleks.
A while back I posted a recipe for Coffee Mousse
. Back then I was able to tolerate egg yolks, which I don’t anymore. So the “mousse” below is my new favorite snack or dessert.
what you need:
- 1 cup freshly brewed coffee (I used Mayorga organic dark roast)
- 1 level tablespoon unflavored Gelatin (I use Great Lakes)
- 1/2 to 3/4 tablespoon cinnamon
- 1/2 to 1 tablespoon coconut oil (Nutiva)
- 4 to 5 ice cubes
- optional: liquid stevia or honey to taste (I make mine unsweetened.
what you do:
Pour hot coffee into blender. Add gelatin, cinnamon, and coconut oil, and blend thoroughly. Add ice cubes and blend until fully crushed and blended into “mousse”. At this point it should be really cold and already start to gel. Place in freezer if you want to eat it within 5 to 10 minutes, or place in refrigerator for roughly an hour.
You can make this with hot water instead of coffee as well as a Cinnamon Mousse.
what you need:
what you do:
Process pumpkin seeds in food processor until it starts to turn into pumpkin seed butter. This will take 10 to 15 minutes and you will have to scrape the sides periodically. Add remaining ingredients except shredded coconut until well blended. Line dish of choice with parchment paper, spread pumpkin seed butter mixture evenly in dish. Sprinkle with shredded coconut and place in freezer for 30 minutes to an hour.
These can be stored in and eaten right out of the freezer if desired. You could also blend some of the shredded coconut into the mixture.
This post is featured on Make Your Own Monday, Natural Living Mondays, and Fat Tuesday.
My grandmother in Germany used to color Easter eggs with onion peel. I always thought they were really pretty. This year I decided to color some Easter eggs as well. I think it’s been around 12 years since I have done this.
what you need:
- eggs (ideally white)
- onion peel (reed beets work, too, but not as well as onion peel)
- sewing thread
- leaves. grass
what you do:
Punch a small hole into the top and bottom of your eggs with a small needle. This will keep them from breaking easily. Throw your onion peel in a pot with water and bring to a boil, then reduce to a simmer. While the onion peels are simmering, start on your eggs.
Cut off a piece of panty hose and tie one end off with a piece of thread. Dip egg in water (this holds the leaves in place better) and place a leave or piece of grass on either side. Hold leaves in place with your thumb and index finger. Pull piece of panty hose over the egg and tie off the other end.
When all the eggs are done, place them into the simmering or slowly boiling water with onion peel. Make sure the eggs are completely covered with water. Let them simmer for 10 minutes then remove from heat and let them sit another 15 to 30 minutes – depending on how dark you want them. Remove from pot and rinse with cold water, remove panty hose and leaves. Let the eggs dry then rub with oil or fat (I used a left over chunk of beef fat from a brisket). You can skip this step if you like but it makes them look nice and shiny.
That’s it…you’re done. It helps to have a second person when doing this because it’s easier to tie off the end of the panty hose. The hardest part, if you are slightly (ok very) OCDish like me, is letting go of the fact that the leaves will most likely not be placed evenly on each side. It’s hard to pull the pantyhose over the eggs without the leaves moving. It’s best to use flat, somewhat thin leaves, because they will stick to the eggs better.
This post is shared on Make Your Own Monday, Fat Tuesday, Allergy Free Wednesday.
Over the years, as I was searching for answers to my ever increasing health issues, doctors have said some crazy and hurtful things to me. Below are just a few things I have dealt with. I thank God for giving me the wisdom NOT to buy into these lies and speculations, and to keep searching for real answers. I am also grateful that I found Dr. D and Dr. K at Sophia Health Institute!
- Continued low white blood cell count, for several years, ranging from 2.5 to 3.0 with normal range 4.0 to 10.5.
Doc: “You may just be someone whose WBC is low all the time and it’s normal for you.”
Several doctors actually said this to me. My current doctor KNOWS that this is due to an on-going, serious infection, most likely of viral origin.
- Complaining of just not getting better, feeling sick, etc. despite all blood tests and other tests coming back normal (except for WBC that is).
Doc: “Here is a sample of Prozac. Let us know how you do on it and whether you want us to call in a prescription for more.”
I never did take it and I am so glad I didn’t.
- I mentioned to one doctor that I retain a lot of fluid after eating, not in my extremities, but rather in my thighs, hips, and even my arms if it’s extreme.
Doc: “Yeah, your body doesn’t really work that way.”
She actually said this to me and this was an osteopath who supposedly treats the whole person.
- I complained of abdominal distention in varying degrees after eating which started suddenly one day in 2008. I remember having a flat stomach that morning and by mid-day I looked 4 to 5 months pregnant. Doctor had me lie down on my back, which of course changes the distention somewhat, and then felt around on my stomach.
Doc: “So, do you think you are distended now?” UGH – seriously? Do I “think” I am distended now? No jerk (I actually thought of a different word here) I KNOW I am distended. When my waist increases by 4 to 5 inches after a meal it’s not normal.Another doc: “Maybe it’s middle age spread…you are at that age you know.”
Seriously? So middle age spread, which is such BS by the way, happens in one day in a matter of hours? And you think that’s physically possible?
- I had been seeing an LLMD (Lyme Literate MD) for 5 years presenting with about 45 symptoms right before I was diagnosed with Lyme. This LLMD never thought to check me for Lyme disease and it was my own research that led me to get a CD57 blood test on my own. Because it was really low I went back to this LLMD and asked him to run the Igenex Lyme and Co-Infections panel. My Igenex lab results showed positive for several bands of Lyme and mildly positive for Babesia, a co-infection also carried by ticks. I should add here that Babesia affects the nervous system and one of my bigger issues is POTS (Postural Orthostatic Tachycardia Syndrome). What this means for me, and there are slight variations of this syndrome, is that my heart rate is normal when I am at rest. However, when I stand up, or exert myself with exercise, walking uphill, etc., my heart starts racing while my blood pressure drops. Talk about fun times! First thing in the morning it’s usually really bad and my heart rate has gone as high as 180 while I was walking around fixing my coffee and getting water.
Doc: “I am not sure you really have Lyme disease as the bands that are positive aren’t really that significant. It does say you have Babesia, but it’s the lowest range possible so that’s not really a big deal.”Luckily I already knew what my current doctors’ interpretations of those test results are before I went to see them. One, positive bands are positive bands. Period. Two, the lab looks for antibodies to the various bugs. When you have been chronically ill, your immune system is so depressed that it cannot even produce those antibodies so a negative result doesn’t mean you don’t have the infection. Along those lines, the fact that my body WAS able to produce the Babesia antibodies means that it’s a huge problem for my body. Did I mention that the other doctor is an LLMD?
There was probably more over the years but my mind isn’t working so great these days. If you are reading this and you are sick but have been told nothing is wrong with you, keep searching.
I am once again behind in blogging. Below are my notes, questions, and Dr. D’s answer and comments from the last two phone appointments.
Phone Appointment 02.06.2013
- My treatment plan indicates to start with 10 drops of Cryptolepis in the Lyme cocktail. How much do I need to work up to?
If I can tolerate more, up to 2 droppers per day/cocktail.
- Would it be ok to take MMS internally in addition to doing MMS enemas?
It would probably be too much for me right now given everything else I am on. Instead focus on higher levels of everything in my Lyme cocktail and work up to full dose plus running it through the ultrasonic.
- Started breaking out in my face and getting breast tenderness. Was wondering if DHEA was elevated since I had started supplementing with it (hadn’t seen the blood test results at this point.
DHEA is still in the very low normal range and so is testosterone. But estrogen was relatively high while progesterone was barely detectable. Need to supplement with more progesterone.
- My sublingual progesterone was blocking. Which form should I take?
Will call in an RX at Key pharmacy for olive oil based drops.
Phone Appointment 02.22.2013
- Injected 0.25 GcMAF last week Thursday. Out in cold Saturday. Stuffy nose started Sunday/Monday, headache with toothache since Tuesday. Stuffy nose slightly better but headache and backache are still there. Any thoughts on this?
Sounds like sinus issues….possibly underlying infection. Could be respiratory infection. It would be good to get a new panoramic x-ray. If toothache is not better by tomorrow would like me to try 7 days of Levaquin. OK to take now while I am on Tinidazole and Ivermectin. Once I am done, and when I start Iodoquinol, I need to stop Tinidazole. Once I am done with Iodoquinole and start Albenza, I can go back on Tinidazole as well.
- Is there any particular brand of MMS that is better than others?
All brands should be fine.
- I have four injections of GcMAF left. Should I order more after that or re-test nagalese first?
They usually check nagalese every 4 to 6 months. Since my nagalese was 2.2 I will most likely be on GcMAF for 6 to 12 months. It would be ok to continue on GcMAF and wait a while before re-testing nagalese.
- Ketotifen seems to cause increased and uncontrollable hunger and sweet cravings. Not only is it very unpleasant, but it’s tough with a history of an eating disorder.
Dr. K wants me on it to decrease inflammation/leaky gut but with my history and given the side effects she feels it would be best to leave it alone. I am on other supplements that help with inflammation like aloe vera juice, okra, and others, but nothing is quite as good as Ketotifen. We can get there though without Ketotifen and other patients have as well.
- What are symptoms of this parasite and how will I know if low fat diet is helping?
I would be feeling better if low fat would help. Try it for 6 weeks and if no change go back to eating fat. Dr. D is not a fan of the low fat diet.
- Accuracy of blood test?
It is fairly accurate and if I would like to get tested they can send me a kit.
- Do I need to avoid magnesium as well, including mag sulfate injections?
No oral magnesium except mag oxide but topical and injectable are fine.
- Coconut oil or body butter on skin – do I need to avoid it as well?
Technically yes while I am doing low fat since it gets absorbed through the skin. Reduce as much as possible.
- Safe laptop/keyboard (my cadmium was elevated and keyboards off-gas cadmium)?
No. All new keyboards off-gas cadmium. If I get a new one use external keyboard only.
- MMS enema
- Is it taken up by the portal vein?
Yes. It will have the strongest impact in the intestines and the liver since that is where it is mostly metabolized, but it is also systemic.
- OK to retain longer than 5 minutes?
It is ok if I am able to, but not to stress over doing it longer. Five minutes is long enough for it to get absorbed.
- Thinking of discussion about elevated estrogen last time, remembered that this seems to be an issue when I use testosterone cream. Testosterone doesn’t go up much, but estrogen tends to increase. Would it be worth a try to take more DHEA and less testosterone? If so, how much DHEA?
Another 5 mg of DHEA in evening (I was already taking 5 mg AM).
- Tinidazole – will it cause fungal overgrowth?
No – azole at the end means it has an anti-fungal component.
- Parasites – is there anything I can add to the laundry to kill parasites since I can’t wash everything on the hottest setting?
There are ozone machines for washing machines that takes place of laundry detergent. More friendly to earth and more cost effective over time. Uses just ozone and therefore would kill “bugs”.
Bigger issue is that I might get re-infected from other people and animals. It would be good if DH could take 5 drops of activated MMS daily and to get Pepper de-wormed every 6 months at the vet.
- Heavy metals urine test results
Nutrient status looks good, kidney’s look rough. Lead levels 18 very, very high. Severe level of uranium. Radioactive exposure but body able to throw out in urine which is a good sign. On enough chelators already so no changes.
I had a good phone appointment with Dr. D yesterday. The main purpose was to go through the list of supplements that muscle tested well during my last visit, and for her to tell me which ones I can stop taking. Despite taking quite a few supplements off, my treatment plan is still pretty overwhelming, but I am getting used to it now. I also had several question regarding various supplements and meds as usual. Below is what we discussed.
- TMI Alert – if you are squeamish don’t read this. Found roughly 14 inch long, white/cream colored “something” in my stool two days ago.
Could be from MMS enemas.
- Aloe very juice in cocktail is listed as “making it more tolerable”. Is that for taste only?
No, it heps with possible nausea from cocktail and heals gut as well.
- My RX for Ketotifen is 0.5 mg but I thought Dr. K said 1.0 mg.
Sometimes start patients on smaller dose and then work up. However, later Tiffany called and said it should have been 1.0 mg.
- Could hydrogen peroxide (35% food grade) be beneficial for detox?
Yes. OK to give it a try and see how I feel.
- Sublingual progesterone was blocking but progesterone has been very low on all blood tests.
Try a different brand.
- Dr. K recommended Friedlander Coconut Protein with Colostrum. It has stevia in it which was blocking, is it still ok to use it daily?
Yes, that should be fine. Just means I shouldn’t use a lot of stevia on a daily basis.
- Looked at McDougall diet which seems to be a vegan diet. Not sure I can do this as I am also supposed to avoid grains an other sugars. Research shows that sticking to 15 to 20 grams of fat per day is ok. Would it be ok to eat lean protein?
Yes. Does not want me to do a vegan diet as that is not healthy. She said lean proteins and sticking to that amount of fat per day (not counting fat in Lyme cocktail) is fine.
- Dr. K mentioned trojan horse theory – meaning the fat in the Lyme cocktail surrounds the artemisinin, parasites take fat into the biofilm, artemisinin is released and kills or destroys the biofilm. If so, would it be ok to continue my coffee blended with CO as long as I add artemisinin to it?
She confirmed the Trojan horse theory and said while artemisinin in coffee sound disgusting (haha) that would be totally fine. In addition, she said as long as I have artemisinin in my stomach at the same time I am eating fat it’s fine. I doubt I will do that but at least for now I can keep drinking my coffee blended with CO. Yay!
I didn’t start the low fat diet until yesterday. I guess I needed a few days to get used to the idea, go through some self-pity over it, and do some research. Monday was my first day and I definitely do not like it, but I keep telling myself it’s only for six weeks. So this is sort of what a typical day looks like for me now.
Continue reading Follow-Up Appointment with Dr. D January 2013
My appointment with Dr. K on Tuesday was pretty intense. As always he was compassionate, brilliant, and funny. However, I started my day feeling a bit rough and somewhat emotional. The night before I also started thinking about Mojo and was really missing him a lot. So Tuesday morning, with a combination of time zone changes, travel stress, not sleeping well at the hotel, die off, and missing Mojo, I was vacillating between anger, irritability, and being on the verge of tears.
I mentioned this to Dr. Schaffner, who came in first and asked me how I am doing and if there is anything in particular I want to discuss. Dr. K actually walked in a few minutes after her and pretty much heard most of what I said. I talked about the abdominal distention and immense discomfort I have after eating, constant hunger, cognitive and memory issues, how stressed I am about Pepper, and fatigue. Dr. K asked some questions and then told me to hop on the table.
Continue reading Shoot Me Now AKA I Have A New Treatment Plan